OUR WORK AT CEREBRAL PALSY ALLIANCE
Want to find out how YOU are changing lives? Check out these incredible stories of children and adults living with cerebral palsy.
Charli was diagnosed with CP when she was 1 year old after not hitting the expected developmental milestones for her age. Charli has gone on to flourish and thrive after working very hard together with her CPA therapist and her family to achieve her therapy goals.
Charli's mother Cassie contacted CPA after Charli's initial diagnosis. Charli's family were connected with a team of therapists who have been with Charli since the very beginning and are now like a little family - they share a very special bond.
Charli's family describe her as a bubbly, outgoing, playful little girl who just loves people. She is extremely determined and has already accomplished so much and growing up so fast. Charli and her family are very proud that she represented her CP Community as STEPtember’s Youngest Trainer in 2020.
Imogen was born three weeks early and spent the first ten weeks of her life in NICU. At her six-month check, her parents noticed she wasn't reaching any of her milestones. Straightaway, they were referred to Cerebral Palsy Alliance. Even though Imogen doesn't live in a big city, she receives support from a physiotherapist, occupational therapist and speech pathologist in her rural Orange Community.
When Leon was six months old, he was diagnosed with hydrocephalus (a build-up of fluid in the brain). He was rushed to the hospital for emergency brain surgery. He had another five rounds of brain surgery in the following months. As a result of all the brain surgery, Leon has left-side hemiplegia. But thanks to early intervention, Leon is learning to walk and stand up on his own.
At three-months-old, Marc was diagnosed with spastic quadriplegia, one of the most severe forms of cerebral palsy. It means that he has no control over his muscles.
When Marc was born, he was floppy and unresponsive. An MRI at four days old showed a large white patch at the centre of his brain. Doctors told his parents that he had suffered extensive brain damage.
Today, Marc is a cheeky, thrill-seeking young boy, keen to be involved in all the experiences life has to offer. His brothers adore him.
Want to learn more about where your fundraising money goes?
Read more about Cerebral Palsy Alliance today.
HOW WE’VE STEPPED UP
For over a decade, we’ve been driving international research into the prevention, treatment and cure of cerebral palsy.
Granted to CP research
But our work is far from over. Raising funds for cerebral palsy is now more important than ever. So, this year, we’ve recruited a team of STEPtember trainers to show you how to fundraise in creative and fun new ways.
WHAT WE DO
We support over 6,500 clients and their families to achieve mobility, communication, independence and community inclusion. Our services include:
Access to our therapy, telepractice and support centres.
Early diagnosis and intervention for babies with cerebral palsy.
Delivery of therapy to children and families in rural and regional areas.
Technology and equipment to assist communication, mobility, health, inclusion and independence.
OUR BIGGEST ACHIEVEMENTS
We now know that cerebral palsy is caused by damage to the developing brain, which can result from genetic factors or prematurity. With this knowledge, we’ve been able to make some truly incredible achievements:
Rate of cerebral palsy in Australia has dropped from 1 in 400 to 1 in 700 births.
Average age of diagnosis was previously 19 months, however it’s now possible to diagnosis babies at just 12 weeks.
Now, with the introduction of cooling and magnesium sulphate around the time of birth, we can prevent and reduce the severity of cerebral palsy.
PROJECTS SUPPORTED BY STEPTEMBER
BABIES AT RISK THERAPY PROGRAM - FROM 3 MONTHS OF AGE
Therapy provided to babies in the early stages of their development can have an amazing impact on what a child is able to do. It’s the reason why our Babies at Risk Program is so effective.
The first five years of a child’s life are critical for their brain’s development. The earlier therapy can begin, the more time the brain will have to rewire, relearn and strengthen important connections.
The therapy is delivered at a time when the baby’s brain is still developing and will have the greatest benefit. Providing access to this program early could be the difference between a baby suffering painful hip dislocations or living pain-free.
Services like speech therapy can mean the difference between a mother and father hearing their child say, “I love you”.
Without access to this program, babies without a CP diagnosis can wait months to receive vital therapy. This means they can miss the critical window of opportunity to take advantage of optimal neuroplasticity, thus reducing severity.
With funds raised from STEPtember supporting Babies at Risk program your generosity will help ensure babies at risk of cerebral palsy are given the very best start to life.
RURAL & REGIONAL PROGRAMS
Supporting children with disabilities and their families in regional and remote areas, the Rural and Regional Program was created to assist families who are faced with the additional challenges around accessing support and therapy when living in geographically isolated or remote rural areas in Australia.
Cerebral Palsy Alliance provides support and services to over 1500 children with CP and other disabilities in regional and rural NSW/ACT each year - With currently have 8 regional and rural centres in; Dubbo, Wagga Wagga, East Maitland, Armidale, Nowra, Orange, Port Macquarie and Alstonville .
The funds from STEPtember fundraising will help further extend the access and assistance available to the families in our Regional and Rural Therapy Programs.
In 2005 Cerebral Palsy Alliance established a Research Foundation to fund Australian and international cerebral palsy research. Through an annual grants program the Foundation funds the world’s best and brightest researchers to find better treatments for cerebral palsy as well as ways to prevent and potentially cure cerebral palsy.
Current cerebral palsy research priorities include the early detection and treatment, Stem Cell Therapy, genetic causes and pain management.
The rate of cerebral palsy in Australia has fallen by an astonishing 30% since the Foundation was established in 2005. This along with other research achievements has been made possible thanks to support from our amazing donors.
To continue this huge impact on cerebral palsy in Australia, we need you this STEPtember. Join us in fundraising to support the Foundation and its vital research into the causes prevention and cure of cerebral palsy in Australia.
TOGETHER, LET'S RAISE FOR PEOPLE WITH CEREBRAL PALSY
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