LET’S ALL KEEP MOVING FOR CEREBRAL PALSY
As a fully virtual event, STEPtember is a fun and safe way to boost health, happiness and teamwork, wherever you choose to participate from. And, with our new STEPtember trainers on board to help you achieve your health and fundraising goals, there’s never been a better time to step up! Find motivation from their stories and learn more about the incredible work being done at Cerebral Palsy Alliance – made possible thanks to the fundraising efforts of people like you who choose to step up each year.
MEET OUR STEPTEMBER TRAINERS
All of our trainers are unique, but they share a common goal: to see you succeed this STEPtember. Follow their tips to unlock your potential and earn coveted Trainer Badges: available only to the most dedicated STEPtember participants. Do you have what it takes to collect them all?
Playful, creative and always optimistic, Charli has never once shied away from a challenge and she’s not about to start now. Thanks to ongoing hydrotherapy at CPA, Charli has been able to make a splash as a confident swimmer who’s getting better every day. Outside of the pool, she stays active with her friends and family who are amazed at her ability to set goals and smash expectations.
Complete all three Participation Milestones to earn Charli’s Badge.
A supportive athlete with a competitive edge, Tej is a force to be reckoned with. With years of exercise physiology under his belt, Tej knows what it takes to rise to the challenge. Even with his impressive list of achievements, he’s always looking forward to further sharpen his skills. He knows what it takes to succeed and he’s ready to motivate you to stay fit and healthy this STEPtember.
Complete all three Stepping Milestones to earn Tej's Badge.
Neilob is a self-starting superstar whose love for tennis has taken her to new heights. Her independent nature shines through off the court, where she works with CPA to support the wider STEPtember team. She knows that raising funds for cerebral palsy is now more important than ever. So, this year, she’s ready to help you make every donation count.
Complete all three Fundraising Milestones to earn Neilob’s Badge.
The only thing Marc likes more than music is exploring the great outdoors. Thanks to ongoing speech therapy, Marc now knows how to effectively communicate with his family who have empowered him to embrace his adventurous spirit and sign up as a STEPtember trainer. Now it’s your turn to step up and reach your goals.
MARC'S ALL-ROUNDER BADGE
Complete all nine Campaign Milestones to unlock Marc’s Badge and achieve your elite STEPtember status.
OUR WORK AT CPA
Looking to learn more about our cause? Check out our latest case studies and find out how CPA supports children and adults living with cerebral palsy.
Charli was diagnosed with CP when she was 1 year old after not hitting the expected developmental milestones for her age. Charli has gone on to flourish and thrive after working very hard together with her CPA therapist and her family to achieve her therapy goals.
Charli’s mother Cassie contacted CPA after Charli’s initial diagnosis. Charli’s family were connected with a team of therapists who have been with Charli since the very beginning and are now like a little family – they share a very special bond.
Charli’s family describe her as a bubbly, outgoing, playful little girl who just loves people. She is extremely determined and has already accomplished so much and growing up so fast. Charli and her family are very proud that this year she is representing her CP Community as STEPtember’s youngest Trainer for 2020.
At just 9 years old, Arran is already quite the superstar athlete. In fact, he's the titleholder of two world records! Arran also has cerebral palsy, which goes to show just how powerful your support of STEPtember can be. Aaron’s mother, Karen, knows that the work we do wouldn’t be possible without the generosity of people like you:
“Cerebral Palsy Alliance (CPA) have been amazing! Without a formal diagnosis, they picked us up for OT, physio and speech therapy. By the time Arran was 12 months, those three therapists were sitting on our lounge working with us with what we wanted to do.”
STEPtember is proud to welcome Ben Tudhope back as our Ambassador for STEPtember 2020
Ben is a determined and passionate advocate of the STEPtember cause. Ben shares his story of overcoming the challenges presenting him at a very young age to become an accomplished Olympic Champion. Ben is a living example of determination, his story of overcoming adversity and triumphing against all odds is a message Ben wants to share with other youngsters in the CP community. STEPTember is proud to have Ben Tudhope representing the campaign in 2020.
For children like Joey, new research breakthroughs have proved life changing. When Joey was born, he had a hypoxic brain injury. But, by cooling Joey’s body temperature, doctors were able to minimise the brain damage.
The decision to incubate and cool Joey was made off the back of ground-breaking research funded partially by STEPtember donations. Now, he attends pre-school and enjoys a life that’s not too dissimilar to other children his age – a testament to the importance of people like you who choose to step up.
Want to learn more about where your fundraising money goes?
Read more about Cerebral Palsy Alliance today.
HOW WE’VE STEPPED UP
For over a decade, we’ve been driving international research into the prevention, treatment and cure of cerebral palsy.
Granted to CP research
But our work is far from over. Raising funds for cerebral palsy is now more important than ever. So, this year, we’ve recruited a team of STEPtember trainers to show you how to fundraise in creative and fun new ways.
WHAT WE DO
We support over 6,500 clients and their families to achieve mobility, communication, independence and community inclusion. Our services include:
Access to our therapy, telepractice and support centres.
Early diagnosis and intervention for babies with cerebral palsy.
Delivery of therapy to children and families in rural and regional areas.
Technology and equipment to assist communication, mobility, health, inclusion and independence.
OUR BIGGEST ACHIEVEMENTS
We now know that cerebral palsy is caused by damage to the developing brain, which can result from genetic factors or prematurity. With this knowledge, we’ve been able to make some truly incredible achievements:
Rate of cerebral palsy in Australia has dropped from 1 in 400 to 1 in 700 births.
Average age of diagnosis was previously 19 months, however it’s now possible to diagnosis babies at just 12 weeks.
Now, with the introduction of cooling and magnesium sulphate around the time of birth, we can prevent and reduce the severity of cerebral palsy.
PROJECTS SUPPORTED BY STEPTEMBER
Telepractice is a way for people living with cerebral palsy and other disabilities to access face to face therapy online with their support team.
For rural and remote families and for many of our families impacted by the COVID-19 restrictions, Telepractice is a supplementary service that works to bridge the large block in between on-site therapy sessions. The flexibility of the Telepractice service overcomes access limitations allowing families to achieve their therapy goals while remaining in the comfort and safety of their own homes, without missing out on regular therapy.
Telepractice services include the opportunity for physiotherapy, speech therapy and occupational therapy all to happen remotely and allow therapists to monitor therapy progress closely to ensure the continuation of support in between physical visits.
For many of the families we support are already stretched to their financial limit. For some, access to a tablet or even to the internet is simply out of reach. For Families in this situation STEPtember funds help to support access in the form of the Telepractice Support Kits - Each kit is tailored to the needs of the individual adult or child, but may include a tablet with hard case, relevant internet data plan & access, training with a therapist to use the technology and even specific equipment needed like sensory toys, speciality Apps or computer programs. The cost of a kit is $2,500.
Your fundraising efforts this STEPtember will grant remote and regional families access to a level of support never previously available them in the form of Telepractice Therapy Services and Support Kit Program.
BABIES AT RISK THERAPY PROGRAM - FROM 3 MONTHS OF AGE
Therapy provided to babies in the early stages of their development can have an amazing impact on what a child is able to do. It’s the reason why our Babies at Risk Program is so effective.
The first five years of a child’s life are critical for their brain’s development. The earlier therapy can begin, the more time the brain will have to rewire, relearn and strengthen important connections.
The therapy is delivered at a time when the baby’s brain is still developing and will have the greatest benefit. Providing access to this program early could be the difference between a baby suffering painful hip dislocations or living pain-free.
Services like speech therapy can mean the difference between a mother and father hearing their child say, “I love you”.
Without access to this program, babies without a CP diagnosis can wait months to receive vital therapy. This means they can miss the critical window of opportunity to take advantage of optimal neuroplasticity, thus reducing severity.
With funds raised from STEPtember supporting Babies at Risk program your generosity will help ensure babies at risk of cerebral palsy are given the very best start to life.
RURAL & REGIONAL PROGRAMS
Supporting children with disabilities and their families in regional and remote areas, the Rural and Regional Program was created to assist families who are faced with the additional challenges around accessing support and therapy when living in geographically isolated or remote rural areas in Australia.
Cerebral Palsy Alliance provides support and services to over 1500 children with CP and other disabilities in regional and rural NSW/ACT each year - With currently have 8 regional and rural centres in; Dubbo, Wagga Wagga, East Maitland, Armidale, Nowra, Orange, Port Macquarie and Alstonville .
The funds from STEPtember fundraising will help further extend the access and assistance available to the families in our Regional and Rural Therapy Programs.
In 2005 Cerebral Palsy Alliance established a Research Foundation to fund Australian and international cerebral palsy research. Through an annual grants program the Foundation funds the world’s best and brightest researchers to find better treatments for cerebral palsy as well as ways to prevent and potentially cure cerebral palsy.
Current cerebral palsy research priorities include the early detection and treatment, Stem Cell Therapy, genetic causes and pain management.
The rate of cerebral palsy in Australia has fallen by an astonishing 30% since the Foundation was established in 2005. This along with other research achievements has been made possible thanks to support from our amazing donors.
To continue this huge impact on cerebral palsy in Australia, we need you this STEPtember. Join us in fundraising to support the Foundation and its vital research into the causes prevention and cure of cerebral palsy in Australia.
IN 2020 SO FAR WE HAVE RAISED
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